there were already growing efforts to research and understand autism spectrum disorder (ASD) in adults. However, it is possible that the research landscape has evolved since then. The perceived scarcity of scientific research on adults with autism can be attributed to several factors:
Historical focus on children: Historically, ASD research primarily concentrated on children since the disorder is typically diagnosed in early childhood. Consequently, most early research efforts were centered around understanding and addressing the needs of children with autism. As these children grew up, there was a need to shift the focus to adulthood and aging with autism.
Diagnostic challenges: Diagnosing autism in adults can be more complicated than in children, as many may have learned to mask or compensate for their challenges over time. Additionally, diagnostic criteria were historically designed with a focus on pediatric populations, which might not fully capture the unique presentation of autism in adults.
Limited funding and resources: Funding for autism research has improved over time, but it may still be limited compared to other fields. Consequently, researchers may have focused more on certain aspects of autism that were considered priorities or received more funding.
Longitudinal studies: Meaningful research on adults with autism requires longitudinal studies that track individuals from childhood into adulthood. These studies can be challenging and expensive to conduct, leading to fewer of them being available in the research literature.
Services and support: As children with autism grow up, there is a shift from educational and early intervention services to adult-oriented services and support. The transition to adulthood can be challenging for individuals with autism and their families, and there is a growing awareness of the need for research to inform and improve these adult-focused services.
Inclusion in clinical trials: Many clinical trials and intervention studies primarily focus on children with autism, leaving a gap in research on evidence-based interventions and treatments for adults with autism.
Limited awareness and understanding: Autism in adults might be underdiagnosed or misdiagnosed due to limited awareness among healthcare professionals and the general public about how autism can present differently in adulthood.
While there may have been less research on adults with autism historically, it is important to recognize that efforts to address this gap have been increasing. As the understanding of autism continues to evolve, researchers are placing greater emphasis on studying autism across the lifespan, including adulthood. This shift will likely lead to more comprehensive insights and improved support for individuals with autism as they navigate adulthood.